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“Enjoy life!
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tomorrow is yet to come, but today
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“Het leven is een feest, gister is geweest, morgen moet nog komen maar vandaag leef ik mijn dromen”
- Fiona Waddell

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The CDG Family Network
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Dedicated 
           to Exchange Information, RaiseAwareness, Encourage Research, Advocacy
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BUYER BEWARE! ABC's 20/20 Program "Cure for Your Disease or Empty Promise?" Sugar Pills Have Some People Turning Down Doctor's Advice, But Critics Say They're Bogus.read more

Annual Blood Donor Clinic in Memory of Katelyn Laforet. "It was nice to be able to get the word out there about CDG and get people to donate blood at the same time, not to mention being able to keep Katelyn's memory alive. Every little word that passes about CDG hopefully helps...."" says Debbie, mom to Angel Katelyn CDG Type 1C, Aug 2003-March 2005. read more

Do you have a CDG story to share?
We invite you to share your stories of Strength, Hope and Love.  E-mail your story to  Webmaster.


Glycosylation
Glycosylation is a process by which all human cells build long sugar chains that are attached to proteins. Together the proteins and their attached sugars are called glycoproteins.  Glycoproteins, have many very important functions in the human body and are required for the normal growth & function of all tissues and organs.read more
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Protein Glycosylation Animation
Glycosylation Pathway
Slide Show
The Sugar   Train 
CDG-I Defects
CDG-II Defects

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The CDG Family Network.
 We exchange information with families  and physicians, locate new families and  raise awareness among the medical  community. You can assist in these  important efforts. Donate up to 25% of  every purchase to CDGFN thru iGive.
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Disclaimer: This is a forum for the free expression of ideas created by, and for, parents of children diagnosed with Congenital Disorder of Glycosylation.  The information provided on this web site should NOT be used as a substitute for seeking professional medical diagnosis, treatment and care. You should not rely on any information in these pages to replace consultations with qualified health professionals.
The CDG Family Network,  Attn: Cynthia Wren-Gray,  P.O. Box 860847,  Plano,  Texas, 75074   Phone: 800-250-5273