The stories listed in this section were submitted by parents so that others will learn more about their beautiful children. The link for each cdg type is only active if we have a story to share. We invite you to share your CDG experiences about your own "road to diagnosis". We also invite you to update your stories at any time and it is our pleasure to post new pictures. E-mail your story to firstname.lastname@example.org
Disclaimer: This is a forum for the free expression of ideas created by, and for, parents of children diagnosed with Congenital Disorder of Glycosylation. The information provided on this web site should NOT be used as a substitute for seeking professional medical diagnosis, treatment and care. You should not rely on any information in these pages to replace consultations with qualified health professionals.
The CDG Family Network, Attn: Cynthia Wren-Gray, P.O. Box 860847, Plano, Texas, 75074 Phone: 800-250-5273